Sistema de Salut de Catalunya
Institut Català de la Salut
[Ribas Y] Consorci Sanitari de Terrassa, Terrassa, Barcelona, Spain. [Muñoz Duyos A] Hospital Moisès Broggi, Consorci Sanitari Integral, Sant Joan Despí, Barcelona, Spain. [Franquet M, Guerreiro I, Perau J, Porras O] Patient Author, Barcelona Area, Spain. [Marinello F] Vall d’Hebron Hospital Universitari, Barcelona, Spain
Vall d'Hebron Barcelona Hospital Campus
2025-01-23T08:05:16Z
2025-01-23T08:05:16Z
2024-12-05
Educació del pacient; Qualitat de vida; Càncer de recte
Educación del paciente; Calidad de vida; Cáncer de recto
Patient education; Quality of life; Rectal cancer
Purpose To address the educational gaps and support needs of patients with low anterior resection syndrome (LARS) following rectal cancer surgery. The LARSCAT project aimed to develop comprehensive resources to better inform patients and enhance their quality of life. Methods A qualitative study was conducted between November 2022 and March 2023. Seven focus groups were formed, including six patients, two surgeons, and three nurses. Patients had undergone rectal cancer surgery with stoma reversal 2 to 12 years earlier, and all experienced major LARS. The focus groups, held in-person and online, explored the impact on daily life, social and sexual health, mood, rest, and relationships. Thematic analysis was performed to identify key issues and support strategies following the COREQ guidelines. Results Participants reported insufficient information regarding potential dysfunctions after rectal cancer surgery, and difficulties finding reliable information online. The timing of receiving information varied according to individual coping mechanisms. LARS symptoms significantly impacted daily life, social activities, sexual health, and mood. Patients emphasised the need for more tailored information and supplementary written materials to read at their own pace. Consequently, three comprehensive documents were created and made available online. Conclusion This study highlights a significant gap in patient education on the long-term effects of rectal cancer surgery. The resources developed by the LARSCAT project aim to provide essential support to patients and healthcare professionals. Future research should focus on integrating these resources into routine care and evaluating their impact on patient outcomes and quality of life.
Article
Published version
English
Recte - Càncer - Cirurgia - Complicacions; Pacients - Satisfacció; Educació dels pacients; Investigació qualitativa; DISEASES::Neoplasms::Neoplasms by Site::Digestive System Neoplasms::Gastrointestinal Neoplasms::Intestinal Neoplasms::Colorectal Neoplasms::Rectal Neoplasms; Other subheadings::Other subheadings::Other subheadings::/surgery; HEALTH CARE::Health Care Facilities, Manpower, and Services::Health Services::Preventive Health Services::Health Education::Patient Education as Topic; DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Postoperative Complications; HEALTH CARE::Environment and Public Health::Public Health::Epidemiologic Measurements::Demography::Health Status::Quality of Life; ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Focus Groups; ENFERMEDADES::neoplasias::neoplasias por localización::neoplasias del sistema digestivo::neoplasias gastrointestinales::neoplasias intestinales::neoplasias colorrectales::neoplasias del recto; Otros calificadores::Otros calificadores::Otros calificadores::/cirugía; ATENCIÓN DE SALUD::instalaciones, servicios y personal de asistencia sanitaria::servicios de salud::servicios preventivos de salud::educación en salud::educación de pacientes como asunto; ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::complicaciones posoperatorias; ATENCIÓN DE SALUD::ambiente y salud pública::salud pública::medidas epidemiológicas::demografía::estado de salud::calidad de vida; TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::grupos focales
Springer
International Journal of Colorectal Disease;39
https://doi.org/10.1007/s00384-024-04775-9
Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
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