Sistema de Salut de Catalunya
Institut Català de la Salut
[Zhang Y] University of Auckland, Auckland, New Zealand. [Tedeschi SK] Brigham and Women's Hospital, Boston, Massachusetts, United States of America. [Abhishek A] Academic Rheumatology, University of Nottingham, Nottingham, United Kingdoms and Nottingham NIHR BRC, Nottingham, United Kingdom. [Hensey O] OMERACT patient research partner, Dublin, Ireland. [Grossberg D] OMERACT patient research partner, Erie, Colorado, United States of America. [Cai K] Westmead Hospital, Sydney, Australia. [Coronel L] Vall d’Hebron Hospital Universitari, Barcelona, Spain
Vall d'Hebron Barcelona Hospital Campus
2025-04-25T09:54:37Z
2025-04-25T09:54:37Z
2025-06
Acute calcium pyrophosphate crystal arthritis; Calcium pyrophosphate deposition disease; Delphi
Artritis aguda por cristales de pirofosfato de calcio; Enfermedad por depósito de pirofosfato de calcio; Delphi
Artritis aguda per cristalls de pirofosfat de calci; Malaltia per dipòsit de pirofosfat de calci; Delfos
Objective To identify potential domains for the Outcome Measures in Rheumatology (OMERACT) core domain set for studies of an individual flare of acute calcium pyrophosphate (CPP) crystal arthritis. Methods Patient research partners (PRPs) and other participants (mainly clinicians and researchers) completed three rounds of survey using Delphi methodology. Consensus was defined as ≥ 70 % of both PRP and other participants groups rated the domain as a ‘critically important domain to include’. In a subsequent ranking exercise, all participants were asked to rank and comment on up to 10 domains to include as core domains. Results Fourteen domains reached consensus as critically important in the Delphi survey. In the Pathophysiological Manifestations area, the domains were joint pain, joint tenderness, joint swelling, joint inflammation on imaging tests and duration of acute CPP crystal arthritis flare. In the Life Impact area, the domains were overall function, ability to complete daily tasks, ability to work, health related quality of life, patient global assessment response to treatment, patient and physician global assessments of disease activity, and patient satisfaction with treatment. In the Societal/Resource Use area, use of rescue medications reached consensus. In the ranking exercise, joint pain, joint tenderness, joint swelling, overall function and ability to complete daily tasks ranked highest. Conclusion Joint pain, joint swelling, joint tenderness, duration of acute CPP crystal arthritis flare, overall function, ability to complete daily tasks, and patient global assessment of disease activity received the strongest support to be included in the OMERACT core domain set for studies of acute CPP crystal arthritis.
Article
Published version
English
Mètode Delphi; Decisió, Presa de; Artritis; Fosfat de calci; INFORMATION SCIENCE::Information Science::Systems Analysis::Delphi Technique; CHEMICALS AND DRUGS::Inorganic Chemicals::Acids::Acids, Noncarboxylic::Phosphorus Acids::Phosphoric Acids::Phosphates::Calcium Phosphates::Calcium Pyrophosphate; PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Psychology, Social::Group Processes::Consensus; DISEASES::Musculoskeletal Diseases::Joint Diseases::Arthritis; CIENCIA DE LA INFORMACIÓN::Ciencias de la información::análisis de sistemas::técnica Delfos; COMPUESTOS QUÍMICOS Y DROGAS::compuestos inorgánicos::ácidos::ácidos no carboxílicos::ácidos de fósforo::ácidos fosfóricos::fosfatos::fosfatos de calcio::pirofosfato de calcio; PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::psicología social::procesos de grupo::consenso; ENFERMEDADES::enfermedades musculoesqueléticas::artropatías::artritis
Elsevier
Seminars in Arthritis and Rheumatism;72
https://doi.org/10.1016/j.semarthrit.2025.152670
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
Articles científics - HVH [3439]
