Sistema de Salut de Catalunya
Midaglia Fernandez, Luciana
Mulero Carrillo, Patricia
Montalban Gairín, Xavier
Graves, Jennifer
Hauser, Stephen L.
Julian, Laura
[Midaglia L] Servei de Neuroimmonologia clínica, Hospital Universitari Vall d’Hebron, Barcelona, Spain. Centre d’Esclerosi Múltiple de Catalunya (CEMCAT), Barcelona, Spain. Departament de Medicina, Universitat Autònoma de Barcelona, Barcelona, Spain. [Mulero P] Servei de Neuroimmonologia clínica, Hospital Universitari Vall d’Hebron, Barcelona, Spain. Centre d’Esclerosi Múltiple de Catalunya (CEMCAT), Barcelona, Spain. [Montalban X] Neuroimmonologia clínica, Hospital Universitari Vall d’Hebron, Barcelona, Spain. Centre d’Esclerosi Múltiple de Catalunya (CEMCAT), Barcelona, Spain. Hospital Universitari Vall d’Hebron, Barcelona, Spain. Departament de Neurologia, Universitat de Toronto, Toronto, Canadà. [Graves J] Department of Neurology, University of California, San Diego, USA. [Hauser SL] Department of Neurology, University of California, San Francisco,USA. [Julian L] Genentech Inc, South San Francisco, USA
Vall d'Hebron Barcelona Hospital Campus
2020-03-13T12:29:12Z
2020-03-13T12:29:12Z
2019-08-30
Smartphone; Multiple sclerosis; Patient adherence
Teléfono inteligente; Esclerosis múltiple; Adherencia del paciente
Telèfon intel·ligent; Esclerosi múltiple; Adherència del pacient
Background: Current clinical assessments of people with multiple sclerosis are episodic and may miss critical features of functional fluctuations between visits. Objective: The goal of the research was to assess the feasibility of remote active testing and passive monitoring using smartphones and smartwatch technology in people with multiple sclerosis with respect to adherence and satisfaction with the FLOODLIGHT test battery. Methods: People with multiple sclerosis (aged 20 to 57 years; Expanded Disability Status Scale 0-5.5; n=76) and healthy controls (n=25) performed the FLOODLIGHT test battery, comprising active tests (daily, weekly, every two weeks, or on demand) and passive monitoring (sensor-based gait and mobility) for 24 weeks using a smartphone and smartwatch. The primary analysis assessed adherence (proportion of weeks with at least 3 days of completed testing and 4 hours per day passive monitoring) and questionnaire-based satisfaction. In-clinic assessments (clinical and magnetic resonance imaging) were performed. Results: People with multiple sclerosis showed 70% (16.68/24 weeks) adherence to active tests and 79% (18.89/24 weeks) to passive monitoring; satisfaction score was on average 73.7 out of 100. Neither adherence nor satisfaction was associated with specific population characteristics. Test-battery assessments had an at least acceptable impact on daily activities in over 80% (61/72) of people with multiple sclerosis.
English
Esclerosi múltiple; Pacients - Cooperació; Telèfons intel·ligents; DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis; PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Behavior and Behavior Mechanisms::Behavior::Health Behavior::Treatment Adherence and Compliance::Patient Acceptance of Health Care::Patient Compliance; ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Equipment and Supplies::Electrical Equipment and Supplies::Wearable Electronic Devices; ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple; PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::conducta y mecanismos de la conducta::conducta::conducta sanitaria::cumplimiento y adherencia al tratamiento::aceptación de la asistencia sanitaria por parte del paciente::cumplimiento del paciente; TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::equipos y suministros::equipos eléctricos y suministros eléctricos::dispositivos electrónicos ponibles
JMIR Publications
Journal of Medical Internet Research;21(8)
https://www.jmir.org/2019/8/e14863/
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
Articles científics - CEMCAT [136]
Articles científics - HVH [3375]
