Sistema de Salut de Catalunya
Institut Català de la Salut
[Ferrara G, Moreira DC] St. Jude Children's Research Hospital, Memphis, Tennessee, USA. [Aguina M] Princeton University, Princeton, New Jersey, USA. [Mirochnick E] The Chicago Medical School at Rosalind Franklin University of Medicine and Science, North Chicago, Illinois, USA. [Wiphatphumiprates P] Rhodes College, Memphis, Tennessee, USA. [Sniderman E] Northern Alberta Children's Cancer Program, Stollery Children's Hospital, Edmonton, Alberta, Canada. [Velasco P] Servei d'Hematologia i Oncologia Pediàtriques, Vall d'Hebron Hospital Universitari, Barcelona, Spain
Vall d'Hebron Barcelona Hospital Campus
2023-07-05T07:41:33Z
2023-07-05T07:41:33Z
2023-06
Pediatric cancer; Psychosocial studies; Quality of life
Càncer pediàtric; Estudis psicosocials; Qualitat de vida
Cáncer pediátrico; Estudios psicosociales; Calidad de vida
Background The COVID-19 pandemic altered healthcare systems globally, causing delays in care delivery and increased anxiety among patients and families. This study examined how hospital stakeholders and clinicians perceived the global impact of the COVID-19 pandemic on children with cancer and their families. Methods This secondary analysis examined data from a qualitative study consisting of 19 focus groups conducted in 8 languages throughout 16 countries. A codebook was developed with novel codes derived inductively from transcript review. In-depth analysis focused on the impact of the COVID-19 pandemic on children with cancer and their families. Results Eight themes describing the impact of the pandemic on patients and their families were identified and classified into three domains: contributing factors (COVID-19 Policies, Cancer Treatment Modifications, COVID-19 Symptoms, Beliefs), patient-related impacts (Quality of Care, Psychosocial impacts, Treatment Reluctance), and the central transformer (Communication). Participants described the ability of communication to transform the effect of contributing factors on patient-related impacts. The valence of impacts depended on the quality and quantity of communication among clinicians and between clinicians and patients and families. Conclusions Communication served as the central factor impacting whether the COVID-19 pandemic positively or negatively affected children with cancer and families. These findings emphasize the key role communication plays in delivering patient-centered care and can guide future development of communication-centered interventions globally.
Funding support to St. Jude Children's Research Hospital provided by the Cancer Center Support (CORE) grant (CA21765) and the American Lebanese-Syrian Associated Charities (ALSAC).
Article
Published version
English
Càncer - Tractament; Comunicació; Infants; COVID-19 (Malaltia); PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Behavior::Communication; DISEASES::Virus Diseases::RNA Virus Infections::Nidovirales Infections::Coronaviridae Infections::Coronavirus Infections; DISEASES::Neoplasms; NAMED GROUPS::Persons::Age Groups::Child; PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::conducta::comunicación; ENFERMEDADES::virosis::infecciones por virus ARN::infecciones por Nidovirales::infecciones por Coronaviridae::infecciones por Coronavirus; ENFERMEDADES::neoplasias; DENOMINACIONES DE GRUPOS::personas::Grupos de Edad::niño
Wiley
Cancer Medicine;12(11)
https://doi.org/10.1002/cam4.5950
Attribution 4.0 International
http://creativecommons.org/licenses/by/4.0/
Articles científics - HVH [3440]
