Sistema de Salut de Catalunya
[Gonzalez-Del-Rio M] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain. Girona Neuroimmunology and Multiple Sclerosis Unit, Neurology Department, Dr Josep Trueta Hospital and Santa Caterina Hospital, Girona, Spain. [Bertran-Noguer C] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. Health and Health Care Research Group, Universitat de Girona, Girona, Spain. [Ramió-Torrentà Ll] Neurodegeneration and Neuroinflammation Research Group, Biomedical Research Institute (IDIBGI), Girona, Spain- Girona Neuroimmunology and Multiple Sclerosis Unit, Neurology Department, Dr Josep Trueta Hospital and Santa Caterina Hospital, Girona, Spain. Medical Sciences Department, University of Girona, Girona, Spain. [Zabaleta-Del-Olmo E] Nursing Department, Faculty of Nursing, Universitat de Girona, Girona, Spain. Fundació Institut Universitari per a la recerca a l'Atenció Primària de Salut Jordi Gol i Gurina (IDIAPJGol), Barcelona, Spain. Gerència Territorial de Barcelona, Institut Català de la Salut (ICS), Barcelona, Spain
IDIAP Jordi Gol
2023-01-16T13:24:03Z
2023-01-16T13:24:03Z
2022-09
Multiple sclerosis; Patient-reported outcome measures; Psychometrics; Surveys and questionnaires
Esclerosis múltiple; Medidas de resultado informadas por el paciente; Psicometría; Encuestas y cuestionarios
Esclerosi múltiple; Mesures de resultat informades pel pacient; Psicometria; Enquestes i qüestionaris
Objectives: This review aimed to summarize the evidence on the measurement properties of available disease-related knowledge measurement instruments in people with multiple sclerosis. Study design and setting: We performed a literature search in the MEDLINE (PubMed), CINAHL (EBSCOhost), and PsycINFO (EBSCOhost) databases from inception to February 10, 2021. Eligible studies were reports developing a disease-related knowledge measurement instrument or assessing one or more of its measurement properties. We assessed the methodological quality of the included studies independently using the "COSMIN Risk of Bias" checklist. We graded the quality of the evidence using a GRADE approach. Results: Twenty-four studies provided information on 14 measurement instruments. All instruments showed sufficient evidence for content validity, three for structural validity, and seven for hypothesis testing for construct validity. Cross-cultural validity and criterion validity were not assessed in any instrument. Only two instruments showed sufficient evidence for the internal consistency of their scores, and two others for their test-retest reliability. Responsiveness was assessed in one instrument, but it was rated as indeterminate. Conclusion: Based on the available evidence, two instruments can be recommended for use, two are unrecommended, and five have the potential to be recommended for use but require further research.
Article
Published version
English
Esclerosi múltiple; Psicometria; Enquestes; DISEASES::Nervous System Diseases::Autoimmune Diseases of the Nervous System::Demyelinating Autoimmune Diseases, CNS::Multiple Sclerosis; PSYCHIATRY AND PSYCHOLOGY::Behavioral Disciplines and Activities::Psychological Tests::Psychometrics; ANALYTICAL, DIAGNOSTIC AND THERAPEUTIC TECHNIQUES, AND EQUIPMENT::Investigative Techniques::Epidemiologic Methods::Data Collection::Surveys and Questionnaires; ENFERMEDADES::enfermedades del sistema nervioso::enfermedades autoinmunitarias del sistema nervioso::enfermedades autoinmunes desmielinizantes del SNC::esclerosis múltiple; PSIQUIATRÍA Y PSICOLOGÍA::disciplinas y actividades conductuales::pruebas psicológicas::psicometría; TÉCNICAS Y EQUIPOS ANALÍTICOS, DIAGNÓSTICOS Y TERAPÉUTICOS::técnicas de investigación::métodos epidemiológicos::recopilación de datos::encuestas y cuestionarios
Elsevier
Journal of Clinical Epidemiology;149
https://doi.org/10.1016/j.jclinepi.2022.05.020
Attribution-NonCommercial-NoDerivatives 4.0 International
http://creativecommons.org/licenses/by-nc-nd/4.0/
